Publications

We publish a wealth of publications to support hospice and palliative care providers, covering a wide range of topics.

Publications are listed in order of the date they were published (with the most recent first), but they are also listed by category, or can be found using the keyword search facility.

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  • Mar 27, 2015
    Hospice enabled dementia care – the first steps
    A guide to help hospices establish care for people with dementia, their families and carers.
  • Mar 16, 2015
    Resilience: A framework supporting hospice staff to flourish in stressful times
    The framework provides guidance on interventions from board level to the individual for building a resilient and flourishing hospice workforce
  • Feb 01, 2015
    Difficult Conversations for Young Adults
    This guide was developed in response to a gap in health professionals’ skills in having difficult conversations with the growing number of young adults with life-limiting conditions who come in to their care. This gap was one of the findings of the STEPP research project (a project which looked at examples of positive practice in transition to adult health settings for young adults with life-limiting conditions). It aims to support professionals to improve quality of life and provide peace of mind for young people and their families, by sharing insights from young people themselves and their families about discussing the end of life. The guide describes feelings they experience when having conversations on this sensitive subject and gives ideas about how to approach it. It also aims to be a useful prompt that young people can use to broach the subject of end of life planning with family, friends and professionals.
  • Nov 25, 2014
    Impact Report 2014
  • May 01, 2014
    Difficult Conversations for Heart Failure
    This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers. Thanks to the British Heart Foundation this publication is free of charge.
  • Jan 01, 2014
    Life After Death: Six steps to improve support in bereavement
    Bereaved people across Britain are being failed by a lack of support including in the workplace, according to a new report published by the National Council for Palliative Care, in partnership with the Dying Matters Coalition which it leads and the National Bereavement Alliance. This report reveals survey data that shows a third of people (32%) who were bereaved in the last five years whilst in a job do not feel that their employer treated them with compassion.
  • Oct 13, 2013
    Working towards a hospice workforce that is fit for the future
    This working paper lists the roles and skills required in the hospice workforce in the future, and provides some recommendations to help the sector provide these skills. Author: Skills for Health.
  • Jan 01, 2012
    How would I know? What can I do? How to help someone with dementia who is in pain or distress
    If you are giving care or support to somebody with dementia, particularly as it advances and their ability to communicate reduces, you may find that they sometimes behave out of character. This can be displayed in different ways, including being agitated, frustrated, confused, wandering, anxious, pacing, calling out, aggressive or fearful. And if you can find out what the cause is, you might be able to do something about it.
  • The role of hospices in supporting young people in the transition from children to adult services
    This publication outlines the challenges facing both child and adult palliative care services in supporting young people as they move from children’s to adults services and provides guidance to support these transitions. Author: Lidstone Victoria. (Published October 2013)
  • Future needs and preferences for hospice care: challenges and opportunities for hospices
    This working document provides a summary of the key points raised during a Commission into the Future of Hospice Care event to discuss the implications of the Commission report 'Current and future needs for hospice care: an evidence based report'. Hospices are strongly recommended to read this working document alongside that report. (Published April 2013)

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