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Useful Resources

There are organisations that can provide support and information. A selection of these resources are listed here.

About Hospice UK’s Compassionate Employers Programme

The Compassionate Employers Programme provides practical guidance to support the challenges that employees and employers face around terminal and life-limiting illness, caring responsibilities and bereavement. For further resources and signposting, please see below.

About hospice and palliative care

Visit Hospice UK’s website for information about hospice and palliative care, where to find local services and a step-by-step guide to getting hospice care. Website: www.hospiceuk.org/about-hospice-care/what-is-hospice-care

Together for Short Lives is a charity for children living with life-limiting conditions, and their families. Visit their website for information about hospice and palliative care support for children and young people. Website: www.togetherforshortlives.org.uk

The workplace

ACAS and the UK Government’s website are amongst the resources offering guidance on topics such as parental leave, reasonable adjustments in the workplace for workers who are disabled and benefits such as Personal Independence Payments:

For carers

The charity Carers UK provides information and help for carers. Resources include:

Coping with terminal illness and looking to the future

The NHS website has advice on coping with a terminal illness. Website: www.nhs.uk/conditions/end-of-life-care/coping-with-a-terminal-illness/

See Hospice UK’s booklet, ‘Planning for your future care: a guide’, for information about advance care planning. Download the booklet at: www.hospiceuk.org/what-we-offer/publications

For advice on making a will, see the UK Government website: www.gov.uk/make-will

Spiritual care

Produced by Public Health England, ‘Faith at the end of life: a resource for professionals, providers and commissioners working in communities’ (2016) outlines the importance of faith at the end of life. It includes an overview of the main end of life beliefs, practices and rituals relating to the six major faiths in England. Website: www.gov.uk/government/publications/faith-at-end-of-life-public-health-approach-resource-for-professionals

Talking about end of life issues

Hospice UK has a range of leaflets which are designed to help everyone, whatever their situation, begin conversations about end of life issues. They present useful information in a clear and easy to read manner on subjects including making plans, writing wills, bereavement, talking to children about death and avoiding misconceptions about dying.

Browse the range of leaflets at: www.dyingmatters.org/page/dying-matters-leaflets

What to expect when someone is dying

Sometimes it can be helpful to know a bit more about how things could be in the final days of someone’s life. There is a section on Hospice UK’s website which designed to help prepare carers, families and friends for what to expect in the very last days and hours of a person's life. It helps to answer three questions that you may have already asked, or are likely to ask at some point:

  • What happens when someone is dying?
  • What kind of care can a dying person expect to receive, and what kind of support can I, as someone important to the dying person, expect to receive?
  • Where can I turn for help if I am concerned about someone who is dying?

Website: www.hospiceuk.org/what-to-expect

How to talk to people about death, dying and in bereavement

Hospice UK has a range of leaflets designed to help people to talk to someone who may be approaching the end of their life. This range of titles also includes advice on planning for end of life care, and tips on how to talk to someone who is bereaved.

Browse the range of leaflets at: www.dyingmatters.org/page/dying-matters-leaflets

Information, advice and support after someone has died

What to do when someone dies

Covering how to register the death, notifying government departments and managing financial issues, the UK Government website features a step-by-step guide on what to do after a death.

Website: www.gov.uk/when-someone-dies

Local branches of Citizens Advice may also be able to offer information and advice – find out about local services at: www.citizensadvice.org.uk

Bereavement, grief and loss

The NHS website includes information about dealing with grief and loss. Website: www.nhs.uk/conditions/stress-anxiety-depression/dealing-with-grief-and-loss/

Hospice bereavement support

Hospices offer support and information to the family and friends of people who were cared for by the hospice – both before and after a death.

Some hospices provide bereavement support services to the wider community, meaning that someone does not need to have already been under the care of the hospice in order to access this support.

The directory on Hospice UK’s website can help you find out about local hospices in the UK (and also the Channel Islands and Isle of Man): www.hospiceuk.org/findahospice

Other sources of bereavement support

Cruse Bereavement Care is a national charity which provides support, advice and information to children, young people and adults when someone dies. This includes coping with traumatic loss. Website: www.cruse.org.uk

The national charity Sue Ryder provides an online bereavement counselling service which offers free short-term support for anyone grieving for a loved one. Website: www.sueryder.org/how-we-can-help

The Childhood Bereavement Network offers information and advice on supporting bereaved children and young people. Website: www.childhoodbereavementnetwork.org.uk/

Child Bereavement UK provides information and support (including a helpline) when a baby or child of any age dies or is dying, and when a child is facing bereavement. Website: www.childbereavementuk.org/when-someone-is-not-expected-to-live

Other helplines and online forums

Hospice UK’s Dying Matters online community is for people dealing with terminal illness or bereavement: www.dyingmatters.org/overview/community

There are opportunities to talk to people who may be going through similar experiences. Charities and other organisations which support people living with particular illnesses or conditions often have online chat forums or advice and support services. For example:

To find organisations for specific illnesses and conditions that can offer advice and support, try the Health A-Z on NHS Choices. Website: www.nhs.uk

Additional sources for Legal protection for UK employees

If you would like further information about the programme or any sources referenced, please contact us at: compassionateemployers@hospiceuk.org

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